Potential kidney donor for Liz Thonmson: All she wants is to be self-sufficient


CORNWALL — Liz Thomson’s days are filled with dealing with dialysis for her failing kidneys, the symptoms of the systemic lupus that caused it, and now, chemotherapy for the autoimmune disease.

"The chemo isn’t so great," she said, "but I feel mentally stronger than I have ever been."

Ill since she was 13, all the 24-year-old wants is to be able to lead a normal, self-sufficient life.

"I just want to be a grown-up and be able to take care of myself. I want to finish college and to work and to not have to rely on my parents or anyone else," she said.

The reason for her optimism is a potential kidney donor. Life will be so much better with a fully functioning kidney, she says. Thomson can see herself fulfilling her dream of becoming a teacher. Ironically, the potential donor is a teacher. Amazingly, the two have never met.

Jane Hanley is Thomson’s sister’s Spanish teacher at Cornwall Consolidated School.

"I saw the story about Liz in the paper," Hanley told the Journal. "I feel so strongly about organ donation, I always thought that if I could help family or friends that way, I would. I was very inspired, and I think of everyone at school as family."

"She’s just my sister’s teacher. She didn’t even know me," Thomson said, in awe of Hanley’s generosity. "Even if it doesn’t work out, she is going through so much testing just to find out if she is compatible."

The odd angle to the testing process is it is done sort of in reverse. General health, cancer screening and physiological testing are done first. A couple of weeks ago, Hanley underwent chest X-rays and gave seven vials of blood for compatibility testing. She is waiting for an answer to the latter, vital test. The final step is a glucose tolerance test to determine kidney function. It is a time-consuming, demanding test that is saved for last for those reasons.

"You would think they would do it first," Hanley said, "because they find a large number of people who want to donate a kidney actually have only one that is functioning properly."

It all means frequent trips by Hanley to either her own doctors or to Hartford Hospital, where Thomson was on the transplant list. She recently moved her affiliation to New York Presbyterian Hospital, hoping to increase her odds. Hartford has agreed to handle the testing to make it more convenient for Hanley.

Hanley said she is not nervous at all about the prospect of major surgery and a long recovery.

"My husband is nervous and my mother’s a wreck. But I just feel so lucky to have the health to be able to teach and do what I enjoy. My kids are growing up and I am looking ahead to having more time to devote to things that are almost as important as raising kids. I always ask myself how I can give back."

She will do so in a big way in June when she travels to Africa with a group led by her sister-in-law, Chris Hanley, to aid children at the Mekele School for the Blind in Ethiopia. She does not want to change those plans, even if she gets the go ahead for transplant. At the same time, she doesn’t want to let Thomson down.

"I spoke with an infectious disease specialist at the hospital. There are no real concerns about my going to Africa for such a short time. They’ll do some extra testing when I get back, and we’ll be able to make a final decision."

"Liz and I have only talked on the phone, but I want to do this so badly for her. The success rate goes up drastically when the kidney comes from a live donor. I believe this was meant to be."

Latest News

Walking among the ‘Herd’

Michel Negroponte

Betti Franceschi

"Herd,” a film by Michel Negroponte, will be screening at The Norfolk Library on Saturday April 13 at 5:30 p.m. This mesmerizing documentary investigates the relationship between humans and other sentient beings by following a herd of shaggy Belted Galloway cattle through a little more than a year of their lives.

Negroponte and his wife have had a second home just outside of Livingston Manor, in the southwest corner of the Catskills, for many years. Like many during the pandemic, they moved up north for what they thought would be a few weeks, and now seldom return to their city dwelling. Adjacent to their property is a privately owned farm and when a herd of Belted Galloways arrived, Negroponte realized the subject of his new film.

Keep ReadingShow less
Fresh perspectives in Norfolk Library film series

Diego Ongaro

Photo submitted

Parisian filmmaker Diego Ongaro, who has been living in Norfolk for the past 20 years, has composed a collection of films for viewing based on his unique taste.

The series, titled “Visions of Europe,” began over the winter at the Norfolk Library with a focus on under-the-radar contemporary films with unique voices, highlighting the creative richness and vitality of the European film landscape.

Keep ReadingShow less
New ground to cover and plenty of groundcover

Young native pachysandra from Lindera Nursery shows a variety of color and delicate flowers.

Dee Salomon

It is still too early to sow seeds outside, except for peas, both the edible and floral kind. I have transplanted a few shrubs and a dogwood tree that was root pruned in the fall. I have also moved a few hellebores that seeded in the near woods back into their garden beds near the house; they seem not to mind the few frosty mornings we have recently had. In years past I would have been cleaning up the plant beds but I now know better and will wait at least six weeks more. I have instead found the most perfect time-consuming activity for early spring: teasing out Vinca minor, also known as periwinkle and myrtle, from the ground in places it was never meant to be.

Planting the stuff in the first place is my biggest ever garden regret. It was recommended to me as a groundcover that would hold together a hillside, bare after a removal of invasive plants save for a dozen or so trees. And here we are, twelve years later; there is vinca everywhere. It blankets the hillside and has crept over the top into the woods. It has made its way left and right. I am convinced that vinca is the plastic of the plant world. The stuff won’t die. (The name Vinca comes from the Latin ‘vincire’ which means ‘to bind or fetter.’) Last year I pulled a bunch and left it strewn on the roof of the root cellar for 6 months and the leaves were still green.

Keep ReadingShow less
Matza Lasagne by 'The Cook and the Rabbi'

Culinary craftsmanship intersects with spiritual insights in the wonderfully collaborative book, “The Cook and the Rabbi.” On April 14 at Oblong Books in Rhinebeck (6422 Montgomery Street), the cook, Susan Simon, and the rabbi, Zoe B. Zak, will lead a conversation about food, tradition, holidays, resilience and what to cook this Passover.

Passover, marked by the traditional seder meal, holds profound significance within Jewish culture and for many carries extra meaning this year at a time of great conflict. The word seder, meaning “order” in Hebrew, unfolds in a 15-step progression intertwining prayers, blessings, stories, and songs that narrate the ancient saga of the liberation of the Israelites from slavery. It’s a narrative that has endured for over two millennia, evolving with time yet retaining its essence, a theme echoed beautifully in “The Cook and the Rabbi.”

Keep ReadingShow less