Local author unravels the mystery of Asperger's

MILLERTON — To the untrained eye, Jesse Saperstein is just a little different. That could be said about many people, but the life he’s led is a unique one, explained in his debut book, “Atypical: Life with Asperger’s in 20 1/3 Chapters,†released this past Tuesday.

Saperstein, the son of Saperstein’s village department store owner Lewis Saperstein, was diagnosed with Asperger’s syndrome as a teenager.

Asperger’s is a mild form of autism, and people with it often have difficulty with social interaction and show restricted and repetitive patterns of behavior and interests.

“It’s the inability to relate to one’s peers,†Saperstein, who turned 28 last week, explained in his own words. “I have trouble developing age-appropriate relationships. Throughout childhood I was unable to use imaginative play. I have difficulty with change. It’s hard for me to understand generalization.â€

But Asperger’s is recognized by a pattern of varying symptoms rather than definitive traits shared by all with the disorder.

“We have an expression: When you’ve met one person with autism, you’ve met one person with autism,†Saperstein elaborated, saying that Asperger’s can manifest itself in many different ways. “They could be overly passive or meek or outgoing or polite or rude,†he said. “But there’s always something about them that’s just a little bit different.â€

The journey that Saperstein has taken to reach the publication of his work is both roundabout and quite literal. The author explained that it began with a “thru-hike†of the Appalachian trail he completed over four years ago.

Thru-hikers, as they are called, complete the entire trail, about 2,175 miles spanning from Georgia to Maine, in a single season. Saperstein, walking to raise funds and awareness for the Joey DiPaolo AIDS Foundation, which runs a pediatric camp, finished in seven months and nine days. His  walk raised more than $19,000.

The singular focus of the hike played to Saperstein’s Asperger’s, but when he was finished he acknowledged that he felt lost and without purpose.

“I was so hard up for something to do I donated blood at my high school on the first day back,†he remembered.

He tried his hand in the workplace, but his condition made it difficult; the manifestation of Asperger’s in Saperstein is mild enough that he said it was perceived as a character flaw rather than a disorder.

He decided a book on his experience on the Appalachian Trail would be a good outlet, although he will be the first to admit that writing is a difficult task for him and is not always pleasurable.

It took him two years to draft 300 pages, and then he suffered more than 120 rejections from literary agents before finding a believer in the Jeff Herman Agency in Stockbridge, Mass. But Herman and his wife, Deborah, encouraged Jesse to start over, and focus his writing more on himself and his experiences with Asperger’s.

A manuscript from that angle went through several drafts before a structure emerged. It was ultimately published by Perigee Trade, an imprint of Penguin Books.

“The book [as it’s published] is a series of essays that focus mainly on Asperger’s syndrome,†Saperstein explained. “It’s about all the challenges I’ve faced in my life, and all the foolish things I did and the positive side of Asperger’s that can make for outstanding contributions to society. It’s a mix between mildly inappropriate behavior and my triumphs, like the Appalachian Trail hike. I wrote it for someone who doesn’t have Asperger’s.â€

Saperstein hopes the book will serve as a conduit toward tolerance and acceptance of the condition. But it’s a two-way street, and he is quick to point out that having Asperger’s doesn’t give anyone the excuse to act inappropriately. It’s a constant struggle to interact with people on a day-to-day basis, he acknowledged, and there is little comfort to be found in phrases like, “be yourself,†or “stop trying so hard,†because that’s the complete opposite of what Saperstein deals with every day he wakes up.

“Before I was diagnosed, I just thought I was extremely weird,†he said. “It was nice to know that it wasn’t just a character flaw. But I may have let my condition be an excuse for inappropriate behavior. I’m learning so much in adulthood, and I know I’m going to face the same consequences as everybody else. It’s important to differentiate Asperger’s from inappropriate behavior, and it’s something I’m trying to work on. And you do have to try really hard.â€

Saperstein is looking to be a role model for people dealing with the disorder, and he hopes that his book will help change the stigma and eliminate the mystery surrounding Asperger’s. Like those with other disorders (Saperstein mentioned dyslexia several times), once the public accepts and understands them, it’s easier to integrate themselves into society and lead successful lives.

“Atypical†is a humorous book at times, Saperstein stresses, that looks back at his life and acknowledges the good, the bad and the just a little bit different. There’s a section on his time working at a funeral home, an entire chapter on growing up in Millerton, the story of his Appalachian hike and much more. He’s even become a bit of a celebrity, and over the past few years he’s bumped noses with actors (he knows Sigourney Weaver and Bruce Altman, both of whom contributed written praise for the book’s jacket). Additionally, many Asperger’s syndrome professionals have also endorsed “the observations and life lessons of someone who entertains himself by farting in public and conversing in gibberish with his cats,†as his book begins.

The humor is found looking back at some of the more challenging parts of his life, and an important point to take from his writing is that it’s not always easy living with Asperger’s.

“After my hike ended, I went through a period of failing and losing,†he said. “It was hard to take care of myself. But things have dramatically changed. I’ve got a book out and with that comes the ability to educate people. And my family, agency and close friends have kept me going.â€

He continued that it wasn’t fair for him to speculate on how different people deal with Asperger’s. But for Saperstein, who didn’t meet another person with his disorder until college, writing about his “atypical†life was his own motivation to move forward.

“As a society, what we need are role models with Asperger’s to educate others with the same condition. The same thing happened to me.’â€

Oblong Books & Music will hold a launch party for “Atypical: Life with Asperger’s in 20 1/3 Chapters†at its Millerton store this Saturday, April 10, at 7:30 p.m. Saperstein will be reading and signing copies of his book. For more information on this event, call 518-789-3797 or visit oblongbooks.com.

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